Tuesday, 16 August 2016

My blessings and my indifference towards the diagnosis


My blessings

1. Dhamma teachings relating to sickness and death
2. Total acceptance and mindfulnness of the condition
3. Supportive husband and family
4. Supportive sisters
5. A sister who is a breast cancer survivor and she has demonstrated the strength needed to manage the disease and the will to live and be happy - my pillar of strength and my source of reference!
6. Supportive friends - you know who you are are!
7. My university who granted me compassionate sick leave and a chance for me to bounce back
7. A good insurance cover!

My indifference

1. No drama
2. Knowledge is power
3. Understand the options and move forward
4. Take charge
5. No regrets



Post-surgery recovery


On the  3rd visit to the surgeon, he handed me the tumor marker report. “M, you are lucky, the cancer is ER and PR positive and c-erb negative!”. “It basically means your chemotherapy sessions will be shorter and there will be no Herceptin”. “Hmm, ok”, again, a response with an attitude. In my heart, I was screaming, "I am so lucky among the unfortunate!, Should I cry with joy now?". 

“M..., I am very surprised with your response so far, you seemed to take it very well, from the beginning”. I just smiled, “Perhaps I read a lot and know what’s going on”. I was thinking….does he expect me to break down and cry?. 

“You know M..., cancer is very much luck, I have a couple of patients, some of them young, healthy, exercise in the gym, look good and have young children, but when they came in, they came in with Stage IV cancer. These patients kept on asking me, why him, why them? I really have no answer. I think this happens when God decides to play the lottery and just happen your name rolled out”. 

I thought I was surprised with these statements but I guess he just wanted to console me. I just simply ended by conversation by saying, “Thank you for the surgery, appreciate it very much” and bade him goodbye. That was the longest time I spent in his clinic, hardly more than 10 mins. Dozens of his patients were still waiting for their turn. I just went straight home.

I saw him a week later and got the referral letter to the oncologist, of my choice. Prior to that, I did some homework and thought GMC will be a good place, and then decided on a doctor. On the same day, I drove to GMC and waited for the oncologist for nearly 2 hours, A pleasant looking doctor, he took some time explaining the treatment protocol and confidently told me that none of his patients undergoing chemotherapy have gone through nausea and vomiting. That was a huge relief! He explained other side effects, like losing hair, which I quickly said “Nah, that’s not a problem for me!”. He thumbs up at me and smiled. I must be utterly strong and shameless when saying that. “Ok, I will arrange for the chemotherapy this Monday?”. “Hmm, I prefer this Friday, so that I could do some arrangements and other things, oh yes, I need a letter from you to apply the medical cancer leave from the university”. “ Sure, you will have a total CT scan on the same day as well”. The nurse gave me his HP number and reminded me the next appointment.

Somehow, I was relieved that my first injection would be a week later…at least I have a few days to enjoy myself before the sick days? I went shopping the next day, cut my hair short and have an hour long of foot massage. I ordered some nice scarves and a wig online. I know the journey will be long and winded but I am ready. 


one o'clock position


Both of my breasts have been lumpy all these while. They will be fully engorged and painful, usually a few days before my period. I thought it was pretty normal. I did try to reduce salt intake for instance. One thing for sure, I did not bother to look up if the food that I have been taking would be too estrogenic! Yup, I take soya products occasionally, enjoy black bean soup, use quite a lot of fermented beans for steam fish, soya sauce and yes, Rooibos tea after dinner has been a routine for months.

“M, this time the ultrasound looks no good ya”, the doctor greeted me with this when I sat down next to him. “come, let me check”. I quickly unbuttoned my shirt and unhooked whatever beneath and he said “Hmm, the movement of this lump is no good. I guess it’s either Stage I or II”

I just kept quiet and nodded my head. “Are you ok?, we will schedule the operation on Monday”. “Ok” was my reply and after much thinking I postponed the surgery to a Friday instead, I needed to inform my colleagues and make other arrangements. "Now, let me let you know how I managed this, we will do a lumpectomy first and send the tumor for analysis. Within 15 minutes we will know if the tumor is cancerous, and if indeed cancerous, I will proceed with wide excision axillary clearance". I just stared at him and wondered how he coped with his hundred of patients everyday.....

The doctor must be wondering my lack of expression. Immediately I was whizzed to the Imaging Center again for a complete ultrasound on other organs as well as an X-ray to check on the lungs. It was definitely not a good day in my life, because I have wait hours to get it done. I was rather calm throughout the day.

I messaged my dear husband and told him I need to go for a surgery to remove the tumor. The tumor doesn’t seem friendly and most probably it is not benign. That’s about it.

I am not really sure how my husband or kids felt about my condition, but I do think my positive mindset has sort of influenced them to a certain extent. I explained to my eldest son about my condition, survival rates, chemotherapy and end it with “It’s no big deal, I can handle the chemotherapy, you don’t have to be worried about me, so just focus on your exams this year”. He understood and took it nicely. I am not sure about my youngest son though. 

The lumpectomy and lymph nodes surgery was uneventful. I stayed in the hospital for a couple of days and by the time I went back home, I was fully "functional" and independent. I could do minor housework and cook my own meals. I had sick leave for the whole month. The best part was I managed to complete a short write-up for a newspaper article during this period of time. I pat myself on the back and said "Bravo!". Life goes on until the day. Meanwhile, enjoy the present moment.








A change of diet



Desert rose or Adenium obesum, beautiful and impressive pink blooms - signifies compassion, nurturing and love....the background of this blog and my intention.

Finally my sabbatical leave was approved! I was feeling excited, ecstatic, exhilarated. It was exactly the same feeling when you get a manuscript accepted by the journal of your choice! Anyway, such feeling only lasts initially for a few hours and subsequently to within minutes, and you will be back to earth again, i.e working on the next paper. This is an example of tolerance in academia!

My first sabbatical leave after 10 good years with the university. I chose Germany for a 6-month stint in an electrophysiology lab. I desperately needed to learn some essential skills and additional results to publish a pending paper. I have been to Germany a couple of times, I love the place, the transport system and the environment. 

I still remember when I arrived at Frankfurt airport in the morning of 29th September 2014, carrying two large suitcases looking confused and bewildered. I was waiting for ICE1521 Deutsche Bahn bound for Wurzburg. Frankly, I pretended that I understood the train charts and the platform well. I stood confidently at the waiting gleis and when the train finally arrived, wagon No 31 stopped right in front of me! That was definitely bad news. My seat was located in wagon No 21! 

I ran with the luggage. I have to get into any wagon nearest to me because the train started to move in less than a minute or two. I got in and I have to thank my lucky star, a kind young man volunteered to drag my luggage all the way to the end of the train, where my seat number was located. Who would have done that in Malaysia! I nearly gave him a kiss on the feet but I restrained myself. I guess he wouldn’t bear to see a very confused and pale woman standing in the middle of nowhere. 

The moment I stepped out from the train onto the arrival platform at Wurzburg Hbf, I saw a familiar figure. He was already there waiting for me. We exchanged greetings and he immediately brought me to a nice one-bedroom university apartment, my home for the next 6 months. There was no time to waste as we went straight to lunch, a Chinese meal, to my disappointment! I was expecting something local! Next on the itinerary was a 2 hour orientation around the university, a brief introduction to his colleagues and finally a stroll down the town, including an introduction to the famous wurst stall right at the center of the market! Nah, sausage buns not my cup of tea. Everything were settled within half a day, including my monthly tram tickets. Efficient Germans! Well, I was exhausted but I am forever grateful to this dear professor for his hospitality.

I like my apartment, the bed and view. I do have a little kitchen where I prepare most of my dinner. I frequently hang out at a supermarket near my apartment after work, looking and studying the nicely arranged fresh produce and chocolates. I was "almost" a vegetarian during my stay in Germany. The fresh milk was cheap, about 1.5 € per litre and since my monthly allowances were limited, milk would be a perfect food to fill my tummy every morning! I need to survive for 6 months and I need cheap food. The organic canned pestos were an excellent addition to my boiled vegetables. I took brussel sprouts, carrots, broccoli and spinach and a whole lot of other greens every day. My blood sugar was also nicely controlled. Being a prediabetic for the past few years, indicators such as not having drowsiness 1-2 hours after a main meal means I am doing fine. As for lunch, we eat at the cafeteria. I usually take fish and avoided other meat products and heavy carbs like mashed potatoes or fries. I had beef and duck once, probably during X'mas time. 


Poached salmon and vegetables 

Poached vegetables with nuts

My favourite yogurt



To simply sum up my diet during the short stay, dairy products (milk, cheese, butter and yogurt) and eggs were a significant addition. I had plenty of vegetables and big portions of apples, bananas, walnuts, almonds and other fruits too. I go for 1-2 hour walk in the park at least twice weekly. I thought I had a pretty healthy lifestyle there. However, I am fully aware that dairy products were never part of my daily diet in Malaysia.

As a scientist, I have conveniently forgotten to observe the changes in my own body and never took the effort to understand the cause and effects of such changes. As far as I remembered, I used to suffer from premenstrual congestion of the breasts. I did not bother to find out why…I brushed aside the symptoms and thought to myself, “I guess this is normal…, it will go away once the period starts”. Yes indeed. I remembered having painful engorged and enlarged breasts, uncomfortable but tolerable enough to ignore the pain. Well, I guess that was a silly and expensive mistake.

I had a fibroadenoma removed from my right breast more than 15 years ago.  I have been routinely seeing the same surgeon for regular check-ups since then. He did a brilliant job in removing my fibroadenoma, and thus, to consult him has never been an issue.  

The cool-looking surgeon quipped, “Hmm…looking at your ultrasound images, you do have bilateral breast cysts, some are bleeding inside, some are rather large and some are small”. “Ok, what should I do?”, I asked. 

“Hmm, there is nothing much we can do at this moment and I wouldn’t recommend surgery as they will come again, depending on your hormones. You will get better once you reach menopause when the hormone factory slows down”. “I’ll see you again in 6 months”. 

Each consultation hardly took more than 5 minutes. Well, that was a few weeks before I went to Germany. Unfortunately, I did not see him after 6 months, I saw him 2 years later.

When I returned home in early 2015, I continued with the same lifestyle. Butter on my bread was too much a temptation to miss. Freshly brewed coffee or cocoa mixed with fresh milk became my breakfast for the past 2 years. The Australian fresh milk gave such nice and thick foam when steamed using the steam wand of the coffee machine. The fresh milk really enhanced the sensory experience of the coffee brewed from the expensive Jamaican Blue Mountain beans….something I look forward to every morning. Little did I realize that I was sipping myself to sickness.